Friday, March 30, 2012
FOR EVERY $25 DONATED TO THE CRISTIAN RIVERA FOUNDATION RECEIVE A FREE TICKET TO SEE VICTOR MANUELLE PERFORM LIVE
EVENT: Victor Manuelle's Single Release Party
VENUE: LQ (Latin Quarter)
DATE: Wednesday, April 4, 2012
TIME: 5:00 PM
FOR EVERY $25 DONATED TO
THE CRISTIAN RIVERA FOUNDATION RECEIVE
A FREE TICKET TO SEE
VICTOR MANUELLE PERFORM LIVE!
(Donate $25 Get 1 Ticket, Donate $50 Get 2 Tickets, Donate $75 Get 3 Tickets, etc.)
Offer Expires Tues 4/3/12 - Free Admission with Ticket Only - Tickets Must Be Picked Up at our Office
Monday 4/2 or Tuesday 4/3 from 12 Noon - 7PM - 40 W 37th Street, Suite 402, NYC 10018
Please Bring Your Paypal Receipt and Valid Form of ID When Picking Up Your Ticket - 21 & Over
DETAILS: Head to LQ on Wednesdays for Midtown's top after-work party featuring the best in Latin music performed live on stage. Doors open at 5pm with 2-for-1 drinks until 7pm and $6 sangria all night to go with the free dinner buffet. Free salsa dance lessons from 8pm-9pm. Hot Latin Wednesdays takes place this and every Wednesday at LQ.
$6 Sangrias All Night!
2 For 1 Drinks 5 PM - 7 PM
Free Dinner Buffet
Free Dance Lessons 8 pm - 9 pm
ADDRESS:
511 Lexington Avenue
(Btwn 47 & 48 Street) New York, NY
View Larger Map
Remembering Delaney Starcher
Happy 8th birthday to DIPG angel, Delaney Starcher born April 1st, 2004. "Laney Bug" was diagnosed on October 9th, 2008 at just over 4 years old and about a year later on December 1st, 2009 this little angel earned her wings. She won her battle and found her place in heaven, where she watches over her mom and step-dad, sisters and brother. Delaney was the uplifting spirit to all around her and we're sure that will never change. Happy birthday, angel.
Remembering Isaiah Ryan Garza
Isaiah was a strong spirit that surrounded him with friends. He loved for others to be happy and wanted to make a difference in the world. We applaud his strong will to do so. Born on July 21st, 1992, Isaiah was 12 years old when he was diagnosed with DIPG and it was two years later, April 1st, 2006 that he became an angel. Our thoughts reach out to Isaiah’s family on this day. You will never be forgotten, Isaiah. We’re sure you’re doing wonderful things in heaven. Keep watching over and rest peacefully.
Friday, March 23, 2012
The Cristian Rivera Foundation Raises $10,000 with Successful Theater Event
The Cristian Rivera Foundation hosted a successful charity performance of award-winning bilingual musical DC-7, The Roberto Clemente Story on Thursday, March 22. The event, which included a two-hour red carpet event catered by Celebrity Chef and Cristian Rivera Foundation Committee Member Alex Garcia, the executive chef at Babalu Restaurant and Lounge in the Bronx, raised $10,000 toward Dr. Mark Souweidane's pioneering clinical trials aimed at finding a cure for DIPG. Dr. Souweidane attended the performance and as he accepted the check live on stage from Cristian Rivera Foundation founder John "Gungie" Rivera and all of the committee members in attendance, he announced that his team is within weeks of treating the first patient. Among the night's high-profile attendees were The Real Housewives of New Jersey star Danielle Staub and Cristian Rivera Foundation Committee Members sportscaster and humanitarian Roberto Clemente Jr., founder of the Puerto Rican Traveling Theatre Miriam Colon, businessman Elis Pacheco, founder and president of Metropolitan Recording Corporation Jerry Salerno, DJ Tedsmooth, music producer Aldo Marin, Red Entertainment Group founder Carlos Keyes, businessman Jeff Lavino, David Letterman Show staffer Karen Cerna, real estate agent Fulvia Lora, Bronx Base Builders founder William Padilla, information technology manager Steve Cox, X-Interactive Media founder Carlos Colon, philanthropist Dolores Catania, and concert impresario Ralph Mercado III, a member of the Cristian Rivera Foundation Board of Directors.
Tuesday, March 13, 2012
Bilingual Musical to Host Charity Performance Benefiting the Cristian Rivera Foundation
On Thursday, March 22, DC-7 The Roberto Clemente Story will be hosting a special charity performance to benefit The Cristian Rivera Foundation. Cristian Rivera Foundation Founder John "Gungie" Rivera and Cristian Rivera Foundation Committee Members Ralph Mercado III and Miriam Colon are associate producers of the play, which is produced by Teatro SEA's Manuel Moran.
The play stars Modesto Lacen as Roberto Clemente, the first Hispanic ever inducted into the Baseball Hall of Fame. Clemente was not only a baseball MVP but also a humanitarian and civil rights activist who died 40 years ago when his plane crashed on the way to helping earthquake victims in Nicaragua. Two of Clemente's sons have raved about Lacen's award-winning performance, as well as the entire production, which won six ACE awards including Best Musical.
"For this generation who never got to know my father, Modesto Lacen does a great job portraying him," said Luis Roberto Clemente. "He resembles him a lot and with his singing especially, he gives an amazing performance." Older brother Roberto Clemente Jr. added, "I have seen the show five times now and the whole cast does a wonderful job, but especially Modesto Lacen. I believe that he has truly transformed into my father, no doubt about it."
Tickets for this special performance are $67.50 and can be purchased by calling 212-779-2222 or by visiting http://cristianriverafoundation.org/events.html. The performance begins at 8pm and will be preceded by red carpet arrivals and a cocktail reception from 6pm to 8pm with complimentary wine and hors d'oeuvres provided by Cristian Rivera Foundation Committee Member and Celebrity Chef Alex Garcia and Babalu Restaurant and Lounge in the Bronx.
The play stars Modesto Lacen as Roberto Clemente, the first Hispanic ever inducted into the Baseball Hall of Fame. Clemente was not only a baseball MVP but also a humanitarian and civil rights activist who died 40 years ago when his plane crashed on the way to helping earthquake victims in Nicaragua. Two of Clemente's sons have raved about Lacen's award-winning performance, as well as the entire production, which won six ACE awards including Best Musical.
"For this generation who never got to know my father, Modesto Lacen does a great job portraying him," said Luis Roberto Clemente. "He resembles him a lot and with his singing especially, he gives an amazing performance." Older brother Roberto Clemente Jr. added, "I have seen the show five times now and the whole cast does a wonderful job, but especially Modesto Lacen. I believe that he has truly transformed into my father, no doubt about it."
Tickets for this special performance are $67.50 and can be purchased by calling 212-779-2222 or by visiting http://cristianriverafoundation.org/events.html. The performance begins at 8pm and will be preceded by red carpet arrivals and a cocktail reception from 6pm to 8pm with complimentary wine and hors d'oeuvres provided by Cristian Rivera Foundation Committee Member and Celebrity Chef Alex Garcia and Babalu Restaurant and Lounge in the Bronx.
Monday, March 12, 2012
Collaborating to Cure DIPG
DIPG Dad Juan Manuel Viu flew to the U.S. from Spain once again to meet with fellow DIPG Dad, John “Gungie” Rivera at The Cristian Rivera Foundation offices in New York last night. Dr. Jaume Mora, of Spain’s Hospital Sant Joan de Deu flew into Boston earlier in the week to speak with Dr. Mark Kieran of the Boston Children’s Hospital and Dana Farber Cancer Institute. The next stop on his trip included a meeting in New York with Dr. Mark Souweidane of Wiell Cornell and Memorial Sloan-Kettering Cancer Center. After speaking with both doctors about recent advancement in DIPG research plans, Dr. Mora met with John “Gungie” Rivera and Juan Manuel Viu at the CRF offices. From there, they enjoyed dinner at Babalu Restaurant in the Bronx to discuss upcoming collaboration to cure DIPG.
Saturday, March 10, 2012
Remembering Ralph Mercado
On Sunday, January 25th 2009, I lost my son Cristian to Pontine Glioma, a rare form of brain cancer that has no cure. On Tuesday, March 10th, 2009 I experienced another painful loss. I lost my partner, my mentor, my friend, my brother and my second father: Ralph Mercado. He was the only person in my life who could truly wear all those different hats. Ralph was more than an inspiration. He made an immeasurable impact when he was alive, and has continued to do so long after he passed away.
Ralph was the reason I decided to pursue a career in the Latin entertainment business. He provided me with the inspiration I had been seeking. With Ralph, I co-produced seven successful years of tropical music concerts at Madison Square Garden. It was because of Ralph that I decided to open up my own music label, Prestigio Recordings/Sony Discos. He advised me against it, but I didn't listen. To date, it was the worst investment I have ever made. I should have listened. There were people who were scared of Ralph. They had this perception that he was this impenetrable force to be reckoned with. He was, but I also knew the other side of Ralph. I saw what others didn't. He was caring and he had a gentle soul. He would always call me to set up meetings for one reason or another, and most of the time we would just end up drinking wine and talking about life. We would never really cover any ground on what the meeting had initially been about, but it didn't matter. I enjoyed every minute of it and learned so much about love, life and business from our conversations. There was no better teacher I could have had than the self-made impresario of Latin music who I had the great privilege of calling my friend.
I can close my eyes and go back to December 2008 when Ralph had been released from the hospital for a short while. I remember going to visit him and his son Ralph Mercado III was so amazed at how his father reacted when he saw me. When Ralph saw me, he smiled and requested that I take off my coat. All he kept asking about was the baby (my son Cristian), who was in very bad condition at that time. That was the kind of man he was. Even while he was lying sick in bed, he would still think of others. He was the kind of man who always showed me love and inspired me every day. I am blessed and privileged to have had him in my life. That day, before I left, I kissed and embraced him. He was my family; my partner. Words cannot begin to describe the impact that he had on my life. I feel so happy that I was able to share that day with him and see him smile before he passed.
It has been three years since Ralph passed away and I can still remember it as if it were yesterday. I can still feel the pain that the news of losing such an important person in my life brought me. He is always in my thoughts and remains a part of everything I do as I continually try to pay tribute to him and keep his memory alive. I am honored to have his son Ralph Mercado III by my side today as both my partner and my friend. Together we will never stop working to fulfill the legacy his father left behind. It eases my pain a bit to know that my son is with someone I hold so close to my heart. I am sure Ralph is in Heaven discussing the production of Thomas the Train events with Cristian. I know their legacies will continue to live on here on Earth, in Heaven and in all of our hearts.
Mesenchymal Transition and PDGFRA Amplification/Mutation Are Key Distinct Oncogenic Events in Pediatric Diffuse Intrinsic Pontine Gliomas
"Two distinct transcriptional subclasses of DIPG with specific genomic alterations can be defined at diagnosis by oligodendroglial differentiation or mesenchymal transition, respectively.....Patients in this later group had a significantly worse outcome with an hazard ratio for early deaths, ie before 10 months, 8 fold greater that the ones in the other. The worse outcome of patients with the oligodendroglial type of tumors was confirmed on a series of 55 paraffin-embedded biopsy samples at diagnosis (median overall survival of 7.73 versus 12.37 months."
Free Full Text- http://www.plosone.org/article/info%3Adoi%2F10.1371%2Fjournal.pone.0030313
-----------------------------------
Mesenchymal Transition and PDGFRA Amplification/Mutation Are Key Distinct Oncogenic Events in Pediatric Diffuse Intrinsic Pontine Gliomas. PLoS One. 2012;7(2):e30313. Epub 2012 Feb 28.Puget S, Philippe C, Bax DA, Job B, Varlet P, Junier MP, Andreiuolo F, Carvalho D, Reis R, Guerrini-Rousseau L, Roujeau T, Dessen P, Richon C, Lazar V, Le Teuff G, Sainte-Rose C, Geoerger B, Vassal G, Jones C, Grill J.
Source
Department of Neurosurgery, Necker-Sick Children Hospital, University Paris V Descartes, Paris, France.
Abstract
Diffuse intrinsic pontine glioma (DIPG) is one of the most frequent malignant pediatric brain tumor and its prognosis is universaly fatal. No significant improvement has been made in last thirty years over the standard treatment with radiotherapy. To address the paucity of understanding of DIPGs, we have carried out integrated molecular profiling of a large series of samples obtained with stereotactic biopsy at diagnosis. While chromosomal imbalances did not distinguish DIPG and supratentorial tumors on CGHarrays, gene expression profiling revealed clear differences between them, with brainstem gliomas resembling midline/thalamic tumours, indicating a closely-related origin. Two distinct subgroups of DIPG were identified. The first subgroup displayed mesenchymal and pro-angiogenic characteristics, with stem cell markers enrichment consistent with the possibility to grow tumor stem cells from these biopsies. The other subgroup displayed oligodendroglial features, and appeared largely driven by PDGFRA, in particular through amplification and/or novel missense mutations in the extracellular domain. Patients in this later group had a significantly worse outcome with an hazard ratio for early deaths, ie before 10 months, 8 fold greater that the ones in the other subgroup (p = 0.041, Cox regression model). The worse outcome of patients with the oligodendroglial type of tumors was confirmed on a series of 55 paraffin-embedded biopsy samples at diagnosis (median OS of 7.73 versus 12.37 months, p = 0.045, log-rank test). Two distinct transcriptional subclasses of DIPG with specific genomic alterations can be defined at diagnosis by oligodendroglial differentiation or mesenchymal transition, respectively. Classifying these tumors by signal transduction pathway activation and by mutation in pathway member genes may be particularily valuable for the development of targeted therapies.
Free Full Text- http://www.plosone.org/article/info%3Adoi%2F10.1371%2Fjournal.pone.0030313
-----------------------------------
Mesenchymal Transition and PDGFRA Amplification/Mutation Are Key Distinct Oncogenic Events in Pediatric Diffuse Intrinsic Pontine Gliomas. PLoS One. 2012;7(2):e30313. Epub 2012 Feb 28.Puget S, Philippe C, Bax DA, Job B, Varlet P, Junier MP, Andreiuolo F, Carvalho D, Reis R, Guerrini-Rousseau L, Roujeau T, Dessen P, Richon C, Lazar V, Le Teuff G, Sainte-Rose C, Geoerger B, Vassal G, Jones C, Grill J.
Source
Department of Neurosurgery, Necker-Sick Children Hospital, University Paris V Descartes, Paris, France.
Abstract
Diffuse intrinsic pontine glioma (DIPG) is one of the most frequent malignant pediatric brain tumor and its prognosis is universaly fatal. No significant improvement has been made in last thirty years over the standard treatment with radiotherapy. To address the paucity of understanding of DIPGs, we have carried out integrated molecular profiling of a large series of samples obtained with stereotactic biopsy at diagnosis. While chromosomal imbalances did not distinguish DIPG and supratentorial tumors on CGHarrays, gene expression profiling revealed clear differences between them, with brainstem gliomas resembling midline/thalamic tumours, indicating a closely-related origin. Two distinct subgroups of DIPG were identified. The first subgroup displayed mesenchymal and pro-angiogenic characteristics, with stem cell markers enrichment consistent with the possibility to grow tumor stem cells from these biopsies. The other subgroup displayed oligodendroglial features, and appeared largely driven by PDGFRA, in particular through amplification and/or novel missense mutations in the extracellular domain. Patients in this later group had a significantly worse outcome with an hazard ratio for early deaths, ie before 10 months, 8 fold greater that the ones in the other subgroup (p = 0.041, Cox regression model). The worse outcome of patients with the oligodendroglial type of tumors was confirmed on a series of 55 paraffin-embedded biopsy samples at diagnosis (median OS of 7.73 versus 12.37 months, p = 0.045, log-rank test). Two distinct transcriptional subclasses of DIPG with specific genomic alterations can be defined at diagnosis by oligodendroglial differentiation or mesenchymal transition, respectively. Classifying these tumors by signal transduction pathway activation and by mutation in pathway member genes may be particularily valuable for the development of targeted therapies.
Friday, March 9, 2012
Fairfield Woman Cuts Hair to Raise Awareness for Disease, Honor Fallen Son
Weary of grieving, a young Fairfield mom who lost a son to brain stem cancer three years ago took a bold step Thursday in her journey toward healing -- she shaved her head.
And embedded two important words on the newly buzzed canvas -- CURE DIPG.
"As fun as all this is, it's really about the kids. Remembering Dylan and honoring the kids," emphasized Danah Jewett, 34, as she fingered her spiky new do compliments of Randy Hill at J's Barber Shop off Sunset Avenue in Suisun City. Touched by her cause, Hill donated his services.
Jewett's son, 5-year-old Dylan, died of the rare and inoperable Diffuse Intrinsic Pontine Glioma (DIPG) in 2009 just two months after his diagnosis.
And embedded two important words on the newly buzzed canvas -- CURE DIPG.
"As fun as all this is, it's really about the kids. Remembering Dylan and honoring the kids," emphasized Danah Jewett, 34, as she fingered her spiky new do compliments of Randy Hill at J's Barber Shop off Sunset Avenue in Suisun City. Touched by her cause, Hill donated his services.
Jewett's son, 5-year-old Dylan, died of the rare and inoperable Diffuse Intrinsic Pontine Glioma (DIPG) in 2009 just two months after his diagnosis.
Weary of grieving, a young Fairfield mom who lost a son to brain stem cancer three years ago took a bold step Thursday in her journey toward healing -- she shaved her head.
And embedded two important words on the newly buzzed canvas -- CURE DIPG.
"As fun as all this is, it's really about the kids. Remembering Dylan and honoring the kids," emphasized Danah Jewett, 34, as she fingered her spiky new do compliments of Randy Hill at J's Barber Shop off Sunset Avenue in Suisun City. Touched by her cause, Hill donated his services.
Jewett's son, 5-year-old Dylan, died of the rare and inoperable Diffuse Intrinsic Pontine Glioma (DIPG) in 2009 just two months after his diagnosis.
And embedded two important words on the newly buzzed canvas -- CURE DIPG.
"As fun as all this is, it's really about the kids. Remembering Dylan and honoring the kids," emphasized Danah Jewett, 34, as she fingered her spiky new do compliments of Randy Hill at J's Barber Shop off Sunset Avenue in Suisun City. Touched by her cause, Hill donated his services.
Jewett's son, 5-year-old Dylan, died of the rare and inoperable Diffuse Intrinsic Pontine Glioma (DIPG) in 2009 just two months after his diagnosis.
Not much is known about the condition, so the family donated Dylan's brain tumor to Stanford University School of Medicine for further research. His cells were the first living specimen of DIPG in the world and resulted in significant discoveries, including the cell of origin. By understanding which cell causes the tumor, Jewett said, scientists can further understand the disease.
Dylan's mom hopes to bring more awareness of the disease, as well as of the courageousness of all children who are living with cancer.
"My job, as Dylan's mother, is to make sure his memory lives on, raise awareness about this deadly cancer and tell others about DIPG, and hope that funding will somehow become available," she said. "Children are dying and there is a way to make it stop." Still coming to terms with her own loss, Jewett sponsored the inaugural "Dylan's Warriors Prayer Walk" in Vacaville's Lagoon Valley Park last September. A sequel is planned for this September, complete with run/walk T-shirts and giveaways of gold and gray ribbons representing childhood cancer and brain cancer. Details will be revealed by June or July.
Dylan's mom hopes to bring more awareness of the disease, as well as of the courageousness of all children who are living with cancer.
"My job, as Dylan's mother, is to make sure his memory lives on, raise awareness about this deadly cancer and tell others about DIPG, and hope that funding will somehow become available," she said. "Children are dying and there is a way to make it stop." Still coming to terms with her own loss, Jewett sponsored the inaugural "Dylan's Warriors Prayer Walk" in Vacaville's Lagoon Valley Park last September. A sequel is planned for this September, complete with run/walk T-shirts and giveaways of gold and gray ribbons representing childhood cancer and brain cancer. Details will be revealed by June or July.
In recent months, Jewett's heart has remained heavy. Her family, which includes husband John, who is stationed at Travis Air Force Base, and a son, 4-year-old Jayden, encouraged her to do more for herself. So she did, literally using her head as a tool.
Visiting her hairstylist at "Twisted" in Fairfield, Jewett had her long brown locks separated into 56 braids. Friends and family donated $10 or more per braid for cancer research and, beginning on the anniversary of Dylan's death, she began cutting one braid each day. Meanwhile, she also communed with her faith, delved deep into herself and prayed for renewal.
Visiting her hairstylist at "Twisted" in Fairfield, Jewett had her long brown locks separated into 56 braids. Friends and family donated $10 or more per braid for cancer research and, beginning on the anniversary of Dylan's death, she began cutting one braid each day. Meanwhile, she also communed with her faith, delved deep into herself and prayed for renewal.
"I wanted to seek an intimate relationship with God, just think of God and Dylan, what Dylan meant to me," she explained. "I wanted a process for it, I wanted more than to shave it off and it's over."
By having "CURE DIPG" nearly carved into her head, Jewett said there's no way that she won't generate notice for the condition. Her braids had already caused a mild sensation -- the new hairdo is likely to generate an explosion.
"This year is about Dylan, remembering him, honoring him, about DIPG and what it stole from us," she said. "I want people to think about things, about kids with cancer. It's just so amazing, what they go through."
Even children have asked about DIPG, Jewett said, recalling a 9-year-old girl at church who was so inspired by Jewett's hair that she gave her a $5 donation and pledged to do more to help.
Thus far, Jewett has raised about $400 for Lucile Packard Children's Hospital for DIPG research and plans to donate her hair to Locks of Love, an organization that makes wigs for cancer patients.
For more information, go online to www.curedipg5.com or www.facebook.com/curedipg.
www.thereporter.com/rss/ci_20137032?source=rss
By having "CURE DIPG" nearly carved into her head, Jewett said there's no way that she won't generate notice for the condition. Her braids had already caused a mild sensation -- the new hairdo is likely to generate an explosion.
"This year is about Dylan, remembering him, honoring him, about DIPG and what it stole from us," she said. "I want people to think about things, about kids with cancer. It's just so amazing, what they go through."
Even children have asked about DIPG, Jewett said, recalling a 9-year-old girl at church who was so inspired by Jewett's hair that she gave her a $5 donation and pledged to do more to help.
Thus far, Jewett has raised about $400 for Lucile Packard Children's Hospital for DIPG research and plans to donate her hair to Locks of Love, an organization that makes wigs for cancer patients.
For more information, go online to www.curedipg5.com or www.facebook.com/curedipg.
www.thereporter.com/rss/ci_20137032?source=rss
Thursday, March 8, 2012
Race Funds Cancer Research
By Anne Cloonan
The Fifth Annual Race For Grace will be held March 31 at Norwin High School. The race, which includes a five-kilometer run, five-kilometer walk and a one-mile walk, will benefit the Reflections Of Grace Foundation.
The race and the foundation it benefits are named for Grace Elizabeth Ekis, a 5-year-old who died on Valentine's Day 2008 after a 13-month battle with a rare brain tumor, according to the foundation's website, run by Brian and Tamara Ekis, Grace's parents.
The foundation provides financial, educational and emotional support to the families of children with brain cancer.
Grace's cancer was a diffuse intrinsic pontine glioma, or a tumor of the brainstem that has no known cure and for which no advances in treatment options have been made for more than 30 years, according to the website.
The website describes it as one of the worst forms of childhood brain cancer. Approximately 150 to 200 children are diagnosed with this type of tumor each year, and survival time is typically nine to 12 months.
In 2011, the race had 1,800 registered runners and walkers, 300 volunteers and 300 spectators, and raised more than $88,000 for the families of children with brain cancer.
That was an increase in funds raised from 2010, when 2,000 attended and more than $70,000 was raised for the families of children with brain cancer.
Opening activities for the 2012 race will begin at 7 a.m. March 31, and the race itself will start at 9 a.m. at the high school at 251 McMahon Drive, North Huntingdon.
Registration fees will be $25 for adults and $20 for children age 12 and younger. A waiver must be signed for each participant, regardless of age.
The Reflections Of Grace Foundation is a nonprofit organization; www.reflectionsofgrace.org.
www.post-gazette.com/pg/12068/1215118-56.stm?cmpid=neighborhoods.xml
The Fifth Annual Race For Grace will be held March 31 at Norwin High School. The race, which includes a five-kilometer run, five-kilometer walk and a one-mile walk, will benefit the Reflections Of Grace Foundation.
The race and the foundation it benefits are named for Grace Elizabeth Ekis, a 5-year-old who died on Valentine's Day 2008 after a 13-month battle with a rare brain tumor, according to the foundation's website, run by Brian and Tamara Ekis, Grace's parents.
The foundation provides financial, educational and emotional support to the families of children with brain cancer.
Grace's cancer was a diffuse intrinsic pontine glioma, or a tumor of the brainstem that has no known cure and for which no advances in treatment options have been made for more than 30 years, according to the website.
The website describes it as one of the worst forms of childhood brain cancer. Approximately 150 to 200 children are diagnosed with this type of tumor each year, and survival time is typically nine to 12 months.
In 2011, the race had 1,800 registered runners and walkers, 300 volunteers and 300 spectators, and raised more than $88,000 for the families of children with brain cancer.
That was an increase in funds raised from 2010, when 2,000 attended and more than $70,000 was raised for the families of children with brain cancer.
Opening activities for the 2012 race will begin at 7 a.m. March 31, and the race itself will start at 9 a.m. at the high school at 251 McMahon Drive, North Huntingdon.
Registration fees will be $25 for adults and $20 for children age 12 and younger. A waiver must be signed for each participant, regardless of age.
The Reflections Of Grace Foundation is a nonprofit organization; www.reflectionsofgrace.org.
www.post-gazette.com/pg/12068/1215118-56.stm?cmpid=neighborhoods.xml
Coins For The Cure: Village Elementary School Raises Funds For Pediatric Brain Cancer Research
Coins For The Cure: Village Elementary School Raises Funds For Pediatric Brain Cancer Research |
Each month, the Village Elementary Student Council selects a different cause to support. January's cause was pediatric brain cancer. Previous months focused on juvenile diabetes and pulmonary hypertension. March will be dedicated to raising money for the Coronado Schools Foundation. For every cause, the student council decorates and distributes classroom "coin" jars, collects and counts the money, posts signs around campus and encourages students to learn more about these very important issues.
Student council advisors, Ms. Shady, Ms. Garner, and Mr. Elderson, encourage students to build community and support philanthropic efforts. All three teachers emphasize that this project has been completely student driven, making it even more special. Fifth graders, Jack Outlaw and George Farley, raised the idea of supporting the McKenna Claire Foundation. Both said they heard McKenna's story and wanted to help other children.
McKenna, a vivacious, seemingly healthy, 7-year-old from Huntington Beach was suddenly diagnosed with a rare, inoperable brain stem tumor called Diffuse Intrinsic Pontine Glioma (DIPG). DIPG tumors, like many pediatric brain tumors, have very low survival rates. In July 2011, McKenna Claire lost her battle with cancer just six months after diagnosis.
The McKenna Claire Foundation's mission is to cure pediatric brain cancer by raising awareness, increasing community involvement and funding research. One of the foundation's near-term objectives is to raise money for innovative research being conducted at Stanford University's Monje Lab. Using cell cultures from children who have donated their tumors to research, including McKenna Claire, the Monje Lab is dedicated to understanding how DIPG tumors originate, the molecular signals that drive their growth, and novel ways to treat DIPG.
To learn more or donate visit: mckennaclairefoundation.org. For more information about the Monje Lab please visit: http://neurology.stanford.edu/labs/monjelab.
Thursday, March 1, 2012
Monthly Newsletter February 2012
Welcome to the Cristian Rivera Foundation February Newsletter
As we first mentioned in last month’s newsletter, the Cristian Rivera Foundation is hard at work planning an exciting night at the theater that will help raise money toward our goal of curing DIPG. We are happy to announce that this exciting Cristian Rivera Foundation fundraiser performance of DC-7, the Roberto Clemente Story will take place on Thursday, March 22 at 8pm at the Puerto Rican Traveling Theatre. DC-7 is the award-winning musical commemorating the life and legacy of MLB Hall of Famer and humanitarian Roberto Clemente, the first Hispanic ever inducted into the Baseball Hall of Fame. This award-winning play received six awards from the Latin Critics Association, including Best Actor, Best Book and Best Musical. Cristian Rivera Foundation Founder John “Gungie” Rivera and Cristian Rivera Foundation Committee Members Ralph Mercado III and Miriam Colon are associate producers of the play, which is produced by Teatro SEA’s Manuel Moran.
We hope that you’ll join us for what is not only an exciting night of theater but also a great opportunity to support the Cristian Rivera Foundation. Tickets for this special performance are $67.50 and can be purchased by calling 212-779-2222 or by visiting http://cristianriverafoundation.org/events.html.
Please tell your friends and family not to miss this amazing event, and tell them to visit our website, www.cristianriverafoundation.org, our Facebook page, www.facebook.com/cristianriverafoundation, and our Twitter page @TweetCRF for the latest news on this and all of our exciting events, as well as updates on the latest breakthroughs in medical research that will one day cure DIPG. Remember, there are no known survivors of DIPG and this horrific disease claims the lives of 200-300 young children in the United States every year, typically within 3-18 months from diagnosis.
With your help, the Cristian Rivera Foundation can bring hope to the families devastated by DIPG and give these children a chance to live long, fruitful lives. Please support our cause by making a donation at http://cristianriverafoundation.org/donation.html. Any amount, big or small, is truly appreciated and will make a big difference in the lives of DIPG families. You may also send a check to the Cristian Rivera Foundation, 40 West 37th St, Suite 402, New York, NY 10018. The Cristian Rivera Foundation is a 501(c)(3) and all donations made to the Foundation are tax deductible.
You may also show your support for the Foundation by purchasing official Cristian Rivera Foundation merchandise, including t-shirts, signature blue wristbands and wood beaded bracelets with your choice of bronze or silver charm, which were inspired by Cristian’s Mommy Jenelle Asencio. To see all of the merchandise we have for sale, please visit http://cristianriverafoundation.org/shop.html or see the official Cristian Rivera Foundation merchandise catalog.
Thank you for your continued support of the Cristian Rivera Foundation. Remember to follow us on Twitter and Facebook for the latest updates, and don’t forget to purchase your tickets to the special Cristian Rivera Foundation fundraiser performance of DC-7, The Roberto Clemente Story, happening Thursday, March 22 at 8pm.
Full Steam Ahead!
Sincerely, “Cristian’s Mommy” Jenelle Asencio, John “Gungie” Rivera “Forever Cristian’s Daddy,” and all of the members of the Cristian Rivera Foundation Committee: Aldo Marin, Alex Garcia, Andy Epstein, Anthony Mason, Camilo, Carlos Colon, Carlos Keyes, Dr. Bear Walker, Dr. Ben Velazquez, Carlos R. Colon, Dolores Catania, Doug E. Fresh, Edward Caban, Elis Pacheco, Fernando Ferrer, Fulvia Lora, Funkmaster Flex, Hamlet Peralta, Jay Hernandez, Jeff Lavino, Jerry Chaparro, Jerry Salerno, J.I. Starr, Jim Jones, John “Jelly Bean” Benitez, Johnny Nuñez, Jose Alberto “El Canario,” Joseph Mbeh, Kamar De Los Reyes, Karen Cerna, Katie DeFlorio, Kenan Thompson, Khaliah Ali, Little Louie Vega, Luis Guzman, Manuel Alejandro Ruiz (Boy Wonder), Mark Rosner, Matthew “Mateo” Rajkumar, Melissa Chung, Miriam Colon, Murray Richman, Odalys Molina, Pablo Diaz, Ralph Mercado III, Ramon E. Javier, Ray Wong, Ricardo Cardona, Rickie Ricardo, Robert Vazquez, Ruben Sierra, Solange Osorio, Steve Cox, Tedsmooth, Tony Ferrara, Victor Martinez, Vito Bruno, William Padilla and William Pla.
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