Monday, November 1, 2010

Cristian Rivera Foundation November 2010 Newsletter

Greetings from the Cristian Rivera Foundation.

Welcome to the Cristian Rivera Foundation’s November newsletter. Our first order of business is of course to thank everyone who attended the Second Annual Cristian Rivera Foundation Gala at New York City event space Quo on Tuesday, October 19. It was thanks to your generous participation that we were able to give Dr. Mark Souweidane of Weill Cornell Medical Center and Memorial Sloan Kettering a $30,000 donation.

As you may remember from Dr. Souweidane’s editorial piece that ran in this newsletter earlier in the year, he and his team have been committed to the mission of offering children with Diffuse Intrinsic Pontine Glioma (DIPG) a safe and novel treatment option. Right now Pontine Glioma has no cure and it kills all 300 children in the United States diagnosed with it each year. “Finally, after 12 years of preclinical testing, [my colleagues and I] have designed a treatment option for children with DIPG that uses convection-enhanced delivery (CED) and a tumor specific agent called a monoclonal antibody,” said Dr. Souweidane, who was one of the doctors to perform routine shunt surgeries on Cristian. “The drug delivery method CED bypasses the blood-brain barrier…separating the blood and the brain… thus delivering drugs directly to the tumor.”

The Cristian Rivera Foundation is proud to be one of the brain tumor foundations supporting Dr. Souweidane’s research. We have so much faith in his work that we also awarded him the Vision of Hope Award in recognition of his dedication and commitment to curing this terrible disease.

Dr. Souweidane was one of many award recipients that night. John “Gungie” Rivera presented Committee Members Alex Garcia and Ricardo Cardona with Outstanding Service Awards for their tireless efforts and generosity, as well as for the delicious food they donated to the gala. Committee Members Tedsmooth and Kenya Bradix each got the Cristian Rivera Humanitarian Award for their dedication to the community and the foundation, respectively. Both of them were very close to Cristian and were touched by the surprise honor. Rivera also presented a special posthumous honor to Ralph Mercado, Sr., who passed away from a brain tumor five weeks after Cristian Rivera lost his life to Pontine Glioma. Committee Member Ralph Mercado III accepted the award in memory of his father’s admirable character, lifetime achievements, and courage in his battle with cancer.

We also auctioned off some great one-of-a-kind items and experiences in our live and silent auctions. Lucky winners walked away with an autographed jersey from Carlos Beltran; a painting by Ouattara Watts; baseballs signed by Derek Jeter, Bob Gibson and Hank Aaron; a Cristian Rivera Foundation t-shirt autographed by iCarly star Miranda Cosgrove; a soccer ball signed by David Beckham; a football autographed by all of the New York Giants; boxing gloves autographed by legendary boxer Muhammad Ali and a date with “Las Gemelas Lulu y Lala” from The Luis Jimenez Show on X96.3. We also offered a weekend at the W Hotel in Hoboken, including dinner and lounge for both nights; and a party for 25 people catered by Alex Garcia and Ricardo Cardona, who cooked, cleaned and provided both liquor and staff. The bidding got so intense for this that Alex Garcia decided to triple the offer and gave parties to the three highest bidders. Thanks to all the money raised from these auctions, we were able to send Dr. Souweidane an additional $10,000 toward his research.

If you were at the gala, you were in the company of such high-profile guests as Dangerous Minds actor Renoly Santiago, actor/singer Frankie Negron, Committee Member and rapper Jim Jones, legendary producer and Committee Member Little Louie Vega, Committee Member Funkmaster Flex, Committee Member J.I. Starr of La Mega, singer George Lamond, comedian Ruperto Vanderpool, Committee Member Mr. Olympia Victor Martinez, Committee Member and music producer Boy Wonder of Chosen Few, Committee Member DJ Camilo, painter Ouatarra Watts, Committee Member and celebrity photographer Johnny Nunez, independent film producer/photographer Daniel Hastings, singer Brenda K. Starr, singer O’Neill McKnight, Committee Member and film producer David Maldonado, Bronx Borough President Ruben Diaz, Former Bronx Borough President and Committee Member Fernando Ferrer, and Committee Member and former New York Knicks All Star Anthony Mason.

Mason—who was inducted into the New York City Basketball Hall of Fame in September and the Tennessee State University Sports Hall of Fame this month—was so moved by the message of hope at this year’s gala that he has decided to make the Cristian Rivera Foundation his official charity.

Not only are we proud to report that news, and express our great thanks to Anthony for the gesture, but we are also delighted to welcome “Las Gemelas Lulu y Lala,” aka Marissa and Marianela Gonzalez to the Cristian Rivera Foundation family as our two newest Committee Members. We look forward to working with them to realize our goal of finding a cure.

If you missed the gala, there’s still time to make a donation and support our cause. Visit cristianriverafoundation.org and click on the Donation tab. Or click the Shop tab to buy a signature foundation wristband, t-shirt or pendant from Joan Hornig Jewelry. Every tax-deductible donation or purchase brings us closer to a world without Pontine Glioma. Be sure to tell your friends, family and colleagues about the foundation through email, Facebook, Twitter and word of mouth so that they too can get involved. Together we will find a cure. Full Steam Ahead!


Sincerely,
John “Gungie” Rivera, “Forever Cristian’s Daddy,” and all of the members of the Cristian Rivera Committee: Alex Garcia, Andy Epstein, Anthony Mason, Aurora Flores, Boy Wonder, David Maldonado, Denise Miranda, DJ Camilo, Dr. Ben Velazquez, Dr. Mary Saleeby, Dr. Bear Walker, Edward Caban, Elis Pacheco, Fernando Ferrer, Funkmaster Flex, Hamlet Peralta, James R. Cotto, Jay Hernandez, Jeff & Valerie Lavino, Jim Jones, Jimmy Rodriguez, J.I. Starr, John “Jellybean” Benitez, Johnny Nuñez, Jose Alberto “El Canario,” Joseph Mbeh, Kamar De Los Reyes, Kenya Bradix, Khaliah Ali, Little Louie Vega, Lucho Concepcion, Luis Guzman, Marianela Gonzalez, Marissa Gonzalez, Mark Rosner, Mathew “Mateo” Rajkumar, Melissa Chung, Miriam Colon, Murray Richman, Pablo Diaz, Ralph Mercado III, Ray Wong, Ricardo Cardona, Robert Vazquez, Solange Osorio, Steve Cox, Tedsmooth, Vic Latino, Victor Martinez and William Pla.

Friday, October 29, 2010

New York City Marathon Participant Runs in Honor of Cristian Rivera


The Cristian Rivera Foundation had a presence at this year's New York City Marathon thanks to the dedication of Kimberly Colon-Moller. This was Kimberly's fifth time running the marathon and this year, she decided to use the event to raise awareness about Pontine Glioma. As she ran through all five boroughs of New York City, Kimberly not only wore her Cristian Rivera Foundation signature blue wristband but also a picture of Cristian. "I wear my bracelet everyday," she explained, "and I thought wearing his picture might make more people curious about the foundation and hopefully contribute to the cause." Kimberly's assumption proved to be correct as "many people asked who he was and I explained that he was the son of a longtime friend who passed away from this terrible disease and that a foundation has been established in his memory," she continued. "I also provided the website for more info and if they wanted to donate." Kimberly completed the marathon in 5 hours 22 minutes and 4 seconds, and Cristian was with her every step of the way.

Monday, October 25, 2010

The Second Annual Cristian Rivera Foundation Gala Raises Money Toward Curing Inoperable Pediatric Brain Cancer Pontine Glioma


The Cristian Rivera Foundation presented Dr. Mark Souweidane with $30,000 at its Second Annual Gala, which took place at NYC event space Quo on Tuesday, October 19. The money raised from ticket sales is funding promising clinical research that Dr. Souweidane feels will revolutionize the treatment of Pontine Glioma. Dr. Souweidane, who also received the Foundation's Vision of Hope award, has dedicated his career to the goal of curing this inoperable brain stem tumor. This substantial donation was just one of the night's many highlights. Guests got the chance to bid on unique items in both live and silent auctions, including boxing gloves autographed by legendary boxer Muhammad Ali and a date with "Las Gemelas Lulu y Lala" from The Luis Jimenez Show on X96.3. Celebrity Chefs Alex Garcia and Ricardo Cardona, recipients of the night's Outstanding Service Awards, fed the night's guests with food donated from top NYC restaurants. In addition, Cristian Rivera Foundation founder John "Gungie" Rivera presented Committee Members Tedsmooth and Kenya Bradix with the Cristian Rivera Humanitarian Award for their tireless efforts and dedication to the community. Both of them were very close to Cristian and were touched by the surprise honor. Rivera also presented a special posthumous honor to Ralph Mercado, Sr., who passed away from a brain tumor five weeks after Cristian Rivera lost his life to Pontine Glioma. Committee Member Ralph Mercado III accepted the award in memory of his father's admirable character, lifetime achievements, and courage in his battle with cancer. Among those in attendance were Dangerous Minds actor Renoly Santiago, actor/singer Frankie Negron, Committee Member and rapper Jim Jones, legendary producer and Committee Member Little Louie Vega, Committee Member and former New York Knicks All Star Anthony Mason, Committee Member Funkmaster Flex, Committee Member J.I. Starr of La Mega, singer George Lamond, comedian Ruperto Vanderpool, Committee Member Mr. Olympia Victor Martinez, Committee Member and music producer Boy Wonder of Chosen Few, Committee Member DJ Camilo, singer Brenda K. Starr, singer O'Neill McKnight, Committee Member and film producer David Maldonado, Bronx Borough President Ruben Diaz, and Former Bronx Borough President and Committee Member Fernando Ferrer.

Tuesday, October 19, 2010

Tickets for the Second Annual Cristian Rivera Foundation Gala Are On Sale Now!!!




Show your support for the Cristian Rivera Foundation by attending our Second Annual Gala on Tuesday, October 19. One ticket gets you admission to NYC event space Quo—located at 511 W. 28th Street between 10th and 11th Avenues in Manhattan—from 6pm to 10pm. There will be red carpet arrivals for our esteemed committee members and high-profile guests, plus unlimited food and drinks provided by some of New York's finest restaurants. Cocktail attire required.

All proceeds from your ticket purchase go toward finding a cure for Pontine Glioma.
So click here to buy your ticket today.


TICKETS WILL BE AVAILABLE FOR PICK UP AT THE DOOR

The 2nd Annual Cristian Rivera Foundation Gala Will Take Place Tuesday October 19th at Quo in New York City

 http://www.cristianriverafoundation.org/web_images/crf_announcement.jpg


Tuesday, October 19th at Quo in New York City will be the 2nd Annual Cristian Rivera Foundation Gala. Join us to celebrate the life of Cristian Rivera. Your attendance will mean the world to the Cristian Rivera Foundation and will help save the lives of children suffering from Pontine Glioma.

Keep checking back or call 212-779-2222 for the latest information on entertainment, special guest appearances, how to buy tickets and more.

Thursday, September 30, 2010

Cristian Rivera Foundation September 2010 Newsletter

Monthly Newsletter
September 2010



Greetings from the Cristian Rivera Foundation.

Welcome to the latest edition of the Cristian Rivera Foundation newsletter. September is a very important month for us, both in terms of our goal to cure Pontine Glioma and our personal connection to Cristian Rivera.

September 13th marked what would have been Cristian Rivera’s eighth birthday. His father acknowledged the day by going to a restaurant he and Cristian loved to go to. He then went home and read all of his online journal entries chronicling Cristian’s illness and the Foundation’s milestones.

“I signed Cristian’s guestbook at exactly 12 am today, then lit a candle and prayed,” John wrote in his online journal. “I kissed Cristian’s urn and I spent some time in his room. I could see him sitting there, playing with his trains, as we did so often…He could have played with them for hours, and then we would end the night watching DVDs while I massaged his back, feet and underarms.” For more on John’s remembrances of Cristian on his birthday, click the Journal tab at www.cristianriverafoundation.org.

Symbolically, Cristian’s birthday fell on the same date as the official National Childhood Cancer Awareness Day, a day when we call attention to the pediatric cancers that affect young children like Cristian. In fact, the entire month of September is an important one for causes like ours. September is Childhood Cancer Awareness Month and with 300 children dying from Pontine Glioma alone every year, we can only begin to imagine how many children across the country are affected by pediatric cancers of all types and need to be remembered throughout this very special month.

In the same way that breast cancer is associated with pink and AIDS is associated with red, the color that signifies Childhood Cancer Awareness Month is gold. By wearing a gold ribbon, you can show your support for children and families dealing with cancer, as well as those whose loved ones have been lost.

We at the Cristian Rivera Foundation are proud to acknowledge Childhood Cancer Awareness Month and hope that families all across the country will get the help and funding they need to cure the terrible diseases that take such young, vibrant lives. But our quest doesn’t begin and end in September. It lasts all year round and we won’t rest until a cure for Pontine Glioma is found.

You can help us reach our goal by making a tax-deductible donation, buying a Cristian Rivera Foundation signature blue wristband or t-shirt, or by purchasing a ticket to the Second Annual Cristian Rivera Foundation Gala. This year’s gala will take place on Tuesday, October 19 from 6pm to 10pm at Quo, located at 511 West 28th Street, between 10th and 11th Avenues in New York City. Details on ticket prices, special guests and more will be available soon so be sure to keep checking the News and Events tabs of www.cristianriverafoundation.org.
As always, we thank you for the support you’ve shown us as a valued member of the Cristian Rivera Foundation family. Please visit the Shop tab at www.cristianriveradfoundation.org to purchase t-shirts and wristbands, and continue to spread the word to friends, family and colleagues. Talk about the Foundation, forward this newsletter or even post it on your Facebook, Twitter and other social networking pages so that they too can get involved and help us to cure Pontine Glioma once and for all.

Sincerely,

John “Gungie” Rivera, “Forever Cristian’s Daddy,” and all of the members of the Cristian Rivera Committee: Alex Garcia, Andy Epstein, Anthony Mason, Aurora Flores, Boy Wonder, David Maldonado, Denise Miranda, DJ Camilo, DJ Funkmaster Flex, DJ Tedsmooth, Dr. Ben Velazquez, Dr. Mary Saleeby, Edward Caban, Elis Pacheco, Fernando Ferrer, Hamlet Peralta, James R. Cotto, Jay Hernandez, Jeff & Valerie Lavino, Jim Jones, Jimmy Rodriguez, J.I. Starr, John “Jellybean” Benitez, Johnny Nuñez, Jose Alberto “El Canario,” Joseph Mbeh, Kamar De Los Reyes, Kenya Bradix, Khaliah Ali, Little Louie Vega, Lucho Concepcion, Luis Guzman, Mark Rosner, Mathew “Mateo” Rajkumar, Melissa Chung, Miriam Colon, Murray Richman, Pablo Diaz, Ralph Mercado III, Ray Wong, Ricardo Cardona, Robert Vasquez, Solange Osorio, Steve Cox, Vic Latino, Victor Martinez and William Pla.

Monday, September 13, 2010

Monday September 13th is Cristian Rivera's 8th Birthday and the Official Childhood Cancer Awareness Day

 

 

Monday September 13th 2010 is Cristian Rivera's 8th birthday and this year the official National Childhood Cancer Awareness Day falls on the same day. Please take a moment to remember Cristian Rivera and support the Cristian Rivera Foundation so that we may save the lives of 300 kids a year, and allow them to celebrate their birthday with their loved ones.

I Love You Cristian.

John "Gungie" Rivera
Forever Your Daddy